It was the type of overwhelming problem but running that most parents face from time to time.
At the beginning of last month, the Taylor family was returning after a meal when Trey, 11, started feeling sick.
Mom Elise, 38, remembers: “He started complaining about a very bad stomach pain as soon as we finished eating, then was sick when we arrived at the car.
Back home at Milton Keynes, assuming – as any mother would – it was just something he had eaten, Elise slipped Trey to bed.
“The next morning, he started to straighten a little, so we gave him electrolytes to rehydrate and the next day, he was really not too bad,” she adds.
But it is, in fact, the beginning of a heartbreaking test that three days later, Trey would see Trey in life and in the desperate need of a cardiac transplantation.
That evening, Trey became sick again. “He said he felt pressure on his chest, as if someone was sitting on it,” said Elise.
“I called our general practitioner the next morning, but, when I crossed all the appointments for this day, I was reserved and they said that they could not help. I asked the receptionist if it was normal to have chest pain with norovirus. She just told me to call 111. ”
After complaining about stomach pain, Schoolboy Trey, 11
Trey’s mother, Elise, 38, said that she assumed – as any mother would – the pain of her son’s stomach was the result of something he had eaten
Elise and her husband Dan Taylor, 34, a scaffolder, sounded the NHS assistance line and were finally recalled by a clinician who gave them an opposite face to face at 9 p.m. that evening.
They managed to spend most of the day, but at 6 p.m., Trey’s state quickly worsened.
Elise and Dan noticed that their son’s skin had started scoring and a low blue line had appeared above her upper lip, so they took her to the car and rushed to their care center local emergency.
“The doctor was always asked if he could have obtained food intoxication from the beef burger he had eaten during dinner a few days before,” said Elise. “But it was clear that something was wrong when they tried to test his oxygen levels (in his blood) but could not get a reading of his hands or his feet because he did not have of traffic in them. “
In the 20 minutes, Trey was transported urgently to A&E. Although this is not a standard protocol to radiate a child with an insect of illness, the rapid reflection doctor immediately ordered one. The scan has shown that Trey’s heart had raised the size and was surrounded by liquid.
As a team prepared to transfer the family to the Royal Brompton – a heart hospital specialized in western London – Elise and Dan received news that changed their life: their 11 -year -old son, who had been before had run In the garden with its cousins had a multiple organ failure. And without a heart transplant, he would die.
“We were in full shock – there had never had serious medical problems before and no cardiovascular anomaly had never been recovered by doctors,” said Elise.
A radiography at the hospital showed that Trey’s heart had swelled in size and was surrounded by liquid and he was told that he had a failure of multiple organs. Without heart transplant, he would die
Trey with his father Dan Taylor, 34, a scaffolder, who says that he and his wife are very grateful to all those who are on the organ donation system
“The poor Trey was awake and responsive all the time. He is a very intelligent child and likes the operation of the medical emission of the CBBC, so he was very aware of what was going on. At one point, he even looked at me and said to me, “Mom, why do I have a defibrillator on my chest? He could say it was serious.
Trey was placed in a medically induced coma and placed on an oxygenation machine of the extracorporeal membrane (ECMO) which temporarily replaced its heart and pulmonary function by pumping blood through an artificial lung.
“Before putting him in a coma, we had to tell him that he was going in a big sleep to help his heart,” said Elise.
Almost three weeks later, Trey is still while living. Its renal and liver functions are slowly returning, but its heart cannot repair damage.
And until he can receive a transplant, allowing his heart to be tested, his doctors will not know exactly what made Trey so sick.
The team of specialists dealing Trey suspects that he has experienced a dilated cardiomyopathy, a heart disease that makes the organ widens and weakens, which makes blood pumping difficult. Without rapid treatment, this can cause heart failure and death.
Despite the uncertain future of Trey, the family is expressed to raise awareness.
“Trey had a very sudden beginning of symptoms, including marbled hands and feet, a pulsation visible in his neck and a change of color,” explains Elise. “I do not suggest that all illness bugs are heart failure, but if your child shows one of these signs, go to a doctor as soon as possible and grow for at least a pulmonary radiography.
“Heart insufficiency can present as many other diseases – septicemia, infection or illness.”
Dilated cardiomyopathy affects approximately one in 250 in the United Kingdom – but only 0.001 cases for 250 children.
In the case of Trey, doctors believe that this can be the result of an earlier thoracic infection that he suffered before Christmas, but cannot be sure without dissecting his heart.
Although he took a course in antibiotics and steroids, the infection could have traveled in his heart, explains Elise. “In some cases, flu or infection can manifest in the heart. His doctors say they saw this happen in adults.
While they are waiting for their son’s bedside, Elise and Dan say that they are very grateful to all those who are on the organ donation system.
“A person who chooses to give his organs could save the lives of nine people. I really want to urge people not to retire from the donation program, ”explains Elise.
In the meantime, the couple and their 18 -year -old son are desperately missing Trey.
“Trey is a very polished young soul and a star student at school-all her teachers sent us such beautiful notes about it,” she adds. “He likes technology and is really useful in the house – even by repairing the Kindle of his nan for her. If we can have the chance to save her life, he will really make a difference in the world.
The Taylor family is collecting funds for its livelihood on Go Fund Me (gofundme.com/f/our-trey-treys-journey).
What is the difference between MND and muscular dystrophy?
Both are incurable conditions that affect muscles and cause loss of mobility.
Motoronon disease (MND) is a condition where the nerve cells controlling the movements die gradually.
It generally develops in adulthood and affects movement, speech, swallowing and breathing.
Symptoms can be managed with medicine, physiotherapy and respiratory support.
Muscle dystrophy is a group of genetic diseases that cause progressive muscle weakness and loss of muscle.
It can start in childhood or adulthood and affects the heart and breathing. Physiotherapy and speech therapy can be used to alleviate symptoms, as well as surgery.